Author Archives: admin

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Prostate Cancer News – PRX302 (topsalysin) may help men avoid radical treatment

This new trial is very exciting” for localised prostate cancer. PRX302 (topsalysin).

Read what Prof Mark Emberton has to say about this new trial.

The research leader Dr Hashim Ahmed says that this treatment could help some men avaoid radicl surgery or radiation therapy.

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Read more on Sophiris Bio’s release of promising biopsy data from the first 7 prostate cancer patients treated with topsalysin in a Phase 2a clinical trial.
prostatecancernewstoday.com

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Victoria Wood is said to have kept her cancer diagnosis from family and friends. How did you share your diagnosis?

Do you get all the help and support you need from outside your family circle?

OR

Do you get your support from your family and friends?

OR

Do you get your support from a charity or support group?

OR

Do you get your support from your GP and your Consultants team?

The link below is from the BBC news last week and has comments from patients including myself on how we handled that initial diagnosis.

http://www.bbc.co.uk/news/uk-36100805


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Prostate Cancer – Is now the time for the USPSTF to revisit their decision on PSA testing

PSA testing and prostate cancer the the pro and anti forces have been flexing their muscles this week.

We have seen PCUK publish 13statements aimed at making decision making easier for GPs.

The statements are not a catch all thing but they are a massive step forward from where we currently are in primary care.

And of course there has been some opposition from some GPs but what has surprised me is the ferocity of some GPs comments. So that struggle will go on

The patients that I have heard from agree that the statements seem logical and workable.

And although many GPs may oppose testing I Believe that men and the ones who care for them hold the balance of power.

We will no longer bury our heads in the sand.
I have lost too many good friends to turn my back on this challenge.

We have had the PCRM update which appears to be against screening for prostate cancer.

Then tonight we have a report (link below) that seems to indicate that the USPSTF in the USA my be ready to review their 2014/15 decision of advising against ANY screening for prostate cancer.

http://www.medpagetoday.com/Hematolog…/ProstateCancer/57029…

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Urologist Herbert Lepor, MD, sets forth ‘sensible solution’
www.medpagetoday.com

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Prostate Cancer – Knowledge is power so why are fewer men being tested?

When we accept that Knowledge is Power why is it that fewer men are now being tested for prostate cancer?

‘Tackle’ the UK Prostate Cancer Support Federation are running a campaign called “Get your score on the board” (baseline PSA test.

The red sock campaign says that all men should have a baseline PSA at 40 and be aware of his level of risk.

This article tells us why men need the knowledge and why they should be tested.

http://samadimd.com/…/fewer-men-are-being-screened-for-pros…

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Two new studies published on Tuesday in The Journal of the American Medical Association highlight that likely in accordance to USPSTF recommendations against screening, fewer men are being screened for prostate cancer and fewer cases of…
samadimd.com

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Prostate Cancer “Moonshot”

#‎prostate‬ ‪#‎cancer‬ ‘Moonshot’ Prostate cancer earlier detection and more use of immunotherapy will be two of the benefits that should come from Obamas ‘Moonshot’ investment.

Hopefully we will see a more definitive test for early stage prostate cancer and more advanced treatments in immunotherapy alongside ‘Provenge’

First reports on progress are due in December.

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Deborah Cohen looks at what the “moonshot” targeting cancer announced by President Obama can seek to achieve.
www.bbc.com

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Ten Years of Living With Incurable Metastatic Prostate Cancer

prostate #cancer TEN Y#EARS ago today I was diagnosed with incurable prostate cancer

How to live well with metastatic prostate cancer.

The answer for me is that “Im not entirely sure!”.

Its a complex formulae governed to a large extent by each mans different expectations and capability.

Thursday January 26th 2006 was the date of my first PSA it was 125 which as I now know is not good for a man in his 50s.

The following week it was confirmed that I had metastatic prostate cancer (mPCa) with a gleason score of 9 with cancer spread to distant parts of my body.

At this stage my prostate cancer (PCa) was and still is incurable with an average survival time of 18-24 months.

If my living well with such a diagnosis inspires you and others then I will consider that as a success as it is a part of my red sock campaign mission.

Supporting all those affected by prostate cancer is something that I am passionate about.

I look on every day as a success story, of course not all days are the same, cancer doesn’t allow us that privilege.

The psychological effect is a never ending challenge and the side effects of treatment bring a whole new series of health issues that we men have to deal with.

There are 18 major side effects that often come to men on hormone therapy and that is before we start on radiotherapy and or chemotherapy.

So how is it that some men live longer than others following a diagnosis of incurable PCa?

I remember asking one the country’s leading prostate cancer specialists in Nottingham the question “Why am I still alive after all this time since my initial diagnosis?” his reply was “Your lucky”

Not very reassuring but the reality is that it was absolutely the right answer because there are so many factors that will decide how long each of us men will live with mPCa.

I am happy to live with being “lucky”

We are all uniquely different people and whether you’re a prince or a pauper your chances of developing prostate cancer are risk based, the red sock campaign and the UK Prostate Cancer Support Federation (Tackle) are making great strides towards presenting a risk based screening programme that is driven by patients/carers for our men.

It is our men and those that support them that can and will make a difference by speaking with one voice with a clear message.

I have travelled extensively around the World exploring how other countries manage their PCa patients and I can say that there are some fantastic clinicians in almost every country I have been in contact with, many of whom have been inspirational and a source of support for me.

My travels in those early days (2006/7) helped me realise how “lucky” I am to be on the doorstep of one of the UKs leading Cancer Centre at Velindre in Cardiff.

The staff and volunteers there are an incredible bunch they give loving care to each of those 5000 new cancer patients that are greeted in reception every year .

Professor Malcolm Mason and Dr John Staffurth have been with me every step of my mPCa journey giving me the time and reassurance whenever I ask for it.

Our clinicians can and will guide us through our treatment pathway

But:

From my experience “Living Well With PCa” can have its greatest impact when men with PCa and/or their wives, other family members, partners or friends have access to others who are living with a PCa diagnosis.

Many men and those that support them have said thank you to me for giving them the time they need to talk about living with prostate cancer and sharing my experience.

My good friend Robert Catton (56) said to me before he died of PCa in 2013 that if he hadn’t had prostate cancer he would have missed out on meeting myself and so many others including the BigC choir, Adrian Hockin, Geoff Sainsbury sharing coffee, plum loaf and mince pies!!

He said the quality of his life with prostate cancer was enriched by the people he met on his journey.

Do we men with Pca worry?

Of course we do – every day – but the worry will not take our cancer away.

We want to find a way of “Living Well” for as long as possible with our PCa.

We want our lives to have the best quality we can achieve so that we can give support to others as well as receiving it.

Over the years I have had been inspired by thousands of people (over 4000 through the red sock campaign alone) and each one of you is in my lives diary which one day I hope to have published inspired by an original mentor of mine Robert Vaughan Young (Phoenix5).  But not until the final chapter has been written which may be many years as I intend to continue being “lucky”.

 


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New Samadi Institute of Robotic Surgery for Prostate Cancer patients established in Cyprus.

The Mediterranean Hospital in Limassol, Cyprus has established a Samadi Institute of Robotic Surgery.

The hospital of robotic surgery in Limassol is available for  International prostate cancer patients.

The robotic procedure for removal of mens prostate gland is the one developed by the World renowned Dr David B. Samadi of New York who has carried out almost 6,500 robotic prostatectomies.

His customised technique is known as the Samadi Modified Advanced Robotic Technique (SMART).

http://www.medihospital.org/#!news-2/c10ht

 

 


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Prostate cancer for younger men as reported by Dr D. Samadi

http://www.samadirobotics.com/blog/48-prostate-cancer-for-younger-men


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#Prostate #Cancer – “The future is a better place”

Interesting article by Christopher Woodhouse reported in ‘Trends in Urology & Men’s Health’

The article asks the question “Were things better when we were younger? Are we wiser than our fathers?”

The article is followed by a comment from Dr Jon Rees who is a great advocate for men and the health of their prostate.

Twitter @drjonrees

http://trendsinmenshealth.com/future-better-place/


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Newly diagnosed Prostate Cancer patients and hormone therapy.

Almost all Prostate cancer patients will at one time or another be treated with hormone therapy drugs.

These drugs are very powerful and in most cases very effective at reducing a mans PSA level.

In the UK the most common forms of treatment at this stage are Zoladex, Prostap3 and Firmagon.

These all come with side effects but remember it is your body reacting to the hormone therapy.

The side effects although difficult can be managed with a little knowledge of when and how they might affect you.

Having lived for 10 years with a diagnosis of metastatic prostate cancer and having hormone therapy at various times I have been able to manage the side effects without resorting to any treatments that would reduce the side effects.

Here is a list of the 18 most common side effects and the % of men that they affect.

HAMPERED BY HORMONES?

A Campaign Report addressing the needs of men with prostate cancer

 

 

In summary the statistics of the 18 most prevalent side effects experienced by men receiving hormone therapy from men who took part in the survey were as follows:-

The Percentage of men in the survey who experienced each side effect is shown in brackets after the side effect.

1/      HOT FLASHES     (85%)

 

2/      ERECTILE DYSFUNCTION      (82%)

 

3/      LOSS OF LIBIDO           (80%)

 

4/      TIREDNESS/FATIGUE            (70%)

 

5/      WEIGHT GAIN    (55%)

 

6/      BREAST SWELLING      (55%)

 

7/      COGNITIVE EFFECTS    (45%)

8/      BECOMING MORE EMOTIONAL    (45%)

 

9/      JOINT PAIN         (40%)

 

10/   MOOD SWINGS  (38%)

 

11/   FEELING ANXIOUS      (37%)

 

12/   BREAST TENDERNESS (30%)

 

13/   FEELING LESS MASCULINE   (30%)

 

14/   DEPRESSION       (30%)

 

15/   MUSCLE LOSS     (28%)

 

16/   LOSS OF SELF CONFIDENCE (25%)

 

17/   HAIR LOSS (20%)

 

18/   OSTEOPOROSIS  (8%)

 


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